You give so much of your energy, time, and love to care for someone with dementia, but how often do you stop to care for yourself? The truth is, caregivers deserve just as much attention and support as the people they care for. Your well-being matters, and one of the most impactful ways to care for yourself is by attending a caregiver support group.
Support groups offer family caregivers a unique opportunity to step out of the demands of caregiving and focus on their own needs. Self-care is often thought of as something you do alone—whether it’s exercising, meditating, or finding quiet moments for yourself. However, attending a support group is another powerful form of self-care, especially for family caregivers of people with dementia.
Here are five reasons why attending a support group is an essential act of self-care:
Emotional Relief and Release
Caregiving can be emotionally taxing. Support groups allow you to share your challenges, fears, and frustrations in a judgement-free environment. This emotional release helps reduce stress and avoid burnout (Alzheimer’s Association, 2023). Additionally, caregivers often suppress their emotions to stay strong for their loved ones. Support groups offer a safe space where you can express your feelings, frustrations, and fears without judgement. This emotional release can provide significant relief, helping reduce feelings of stress and anxiety (Stewart, 2020).
Belonging to a Community and a Sense of Validation
Many caregivers experience guilt, sadness, or self-doubt. In a support group, you meet others who truly understand your situation. Hearing that your feelings are normal can provide relief and validation. Caregiving can feel isolating, especially when you don’t have many people around who understand the demands of your situation. Support groups create a community where you can connect with others who are going through similar experiences. These shared connections help combat loneliness and create a sense of belonging (Roberts, 2019).
Access to Practical Advice
Support groups often include tips and strategies from people who have been through similar experiences. These practical suggestions can make caregiving less overwhelming (Family Caregiver Alliance, 2021). Caregiving often brings up questions or challenges that may seem overwhelming. Whether it’s handling difficult behaviours or navigating healthcare systems, support groups are a place to exchange practical tips and solutions with other caregivers who have faced similar obstacles
A Break for Yourself
Attending a support group gives you a break from your caregiving duties. It may seem small, but dedicating time to focus on your needs is crucial to maintaining your health and energy (Cohen-Mansfield, 2019). Research shows that simply attending a support group can lower stress levels. Knowing you have a scheduled time each week to talk openly can serve as a mental and emotional break from the constant demands of caregiving. This regular respite from your caregiving role allows you to recharge (Gallagher-Thompson & Coon, 2007).
Renewed Sense of Purpose
Hearing stories and sharing experiences with others who understand can reignite your sense of purpose in caregiving. It reinforces the value of the love and care you provide, helping you stay motivated even when the journey gets tough (Smith & Nichols, 2020). Support group conversations remind you that the challenges you face are not unique, and that others have navigated similar struggles successfully. This shared understanding can reaffirm the importance of the care you provide, helping you see the positive impact you’re making, even on the hardest days. As you hear how others find meaning in their caregiving roles, it can inspire a renewed commitment to your own journey, strengthening your motivation and resilience.
Beyond emotional relief, support groups provide several practical advantages. They often serve as a source of information on local resources, from respite care options to dementia-specific services. Many groups also bring in guest speakers—experts in dementia care, social workers, or counselors—who provide guidance on managing caregiving challenges.
Self-care isn’t a luxury—it’s a necessity, especially for family caregivers of people with dementia. Attending a support group can be an empowering, nurturing experience that helps you stay strong in your caregiving role. When you care for yourself, you’re better able to care for your loved one.
By investing in your well-being, you’ll be more resilient and present, allowing you to strengthen the bond with the person you’re caring for. Remember, your care matters too, and a support group can be the vital link between sustaining your own health and providing the best care possible for your loved one.
Karen Tyrell CPCA, CDCP is a Dementia Consultant, Educator, Author & Advocate, and Founder of Personalized Dementia Solutions Inc. (www.DementiaSolutions.ca). Karen offers her expertise on dementia care through speaking engagements; workshops; support groups (both online and in-person) and by working one-on-one with families/caregivers to provide emotional support and practical solutions. She was also on the design team for The Village Langley (Verve Senior Living) and provides ongoing education to the Village team, families and the community. If you would like to learn more, please feel free to reach out.
DISCLAIMER:
The contents of this blog are provided for information purposes only. They are not intended to replace clinical diagnosis or medical advice from a health professional.